Parents' Role:
As a parent of a child with special needs, you will gather a tremendous amount of information about your child from various professionals and service agencies. Each time you seek services for your child, you may be asked to supply information. Record keeping is not mandatory for parents of special needs children, but as a primary decision-maker, observer, and advocate for your child, it is to your benefit to keep complete and up-to-date records. A good way to keep your records organized is in a binder/folder which can include the following sections:
Include the name, birth date, any place of birth of family members; parent/guardian name, address, phone number, place of employment, and so forth; brief health history of grandparents, aunts and uncles, parents and siblings.
Include the mother's health during pregnancy and any unusual circumstances at birth or during the infant/toddler stages. Also note the child's behavior patterns and other significant growth and development information.
Include the names and addresses of doctors, dates and nature of serious illnesses and operations, records of the child's immunizations, medications taken, and a copy of the child's birth certificate.
Include the names and dates of schools attended: names of teachers and principals and other staff who provided services for your child; copies of IEPs, test results, therapy reports, or progress reports and examples of (dated) schoolwork.
List the child's interests, clubs and organizations, camps, special awards, and pictures.
Include copies of records from any other agencies with which you have had contact. Also, include letters you have written or received.
Log all phone calls or visits from agencies or professionals. Include dates, names, phone numbers, and the purpose and outcome of such contacts.
For information about the special education parents group, Community Advisory Committee (CAC), please refer to the CAC section tab.